Local mom asks community help in "Local Hero" contest

2014-03-18T14:53:00Z Local mom asks community help in "Local Hero" contestMimi Burke, Girl Power 2 Cure, Inc. volunteer coordinator nwitimes.com

CROWN POINT | May 2014 marks the 3rd annual celebration of National Mobility Awareness Month. For the third year The National Mobility Equipment Dealers Association (NMEDA) has hosted a "Local Heroes" contest. They have teamed together with Chrysler and Toyota to give away 4 new handicap accessible vans.

I have been nominated as a "Local Hero" to (hopefully) win one of the handicap accessible vans. My daughter, Sophia has Rett Syndrome. Rett Syndrome has robbed Sophia of the many things. She can not talk, walk, or use her hands purposefully. Sophia has a feeding tube, and suffers from daily seizures. She is completely dependant on me for every aspect of her life. Sophia has been hospitalized multiple times having spent birthdays, and all holidays in 2013-14 in the PICU (Pediatric ICU.)

She has spent 40 of the past 52 weeks in the PICU at Comer Children's Hospital, Chicago, with me by her side for everyone of those days, and nights. All that hasn't stopped me from trying to give Sophia and Calan the best life possible. I continue to volunteer at Calan's school, our Church, and for Girl Power 2 Cure. As an organization GP2C supports families, raises awareness, and funds RSRT's research program. I have raised thousands of dollars for Rett Syndrome, I coordinate Crown Point's city-wide Rett Syndrome awareness event in October, and I work to bring together communities and other families with Rett Syndrome.

With your DAILY VOTES, I have an opportunity to win a handicap accessible van which would make our life easier and allow me to care for and transport Sophia safely and more easily. This is a daily voting contest through May 9. So, set an alarm to remind yourself to vote at the same time every day :) You can vote from BOTH your email addresses as well as your Facebook/ Twitter accounts. Your daily vote would help us tremendously!

When you go to vote, there is an option to answer a BONUS question and your vote will count as double if you get it right!



To learn more about Rett syndrome, check out Sophia's page at: www.girlpower2cure.org/Sophia

Rett Syndrome Awareness event coordinated by Mimi: http://m.youtube.com/watch?v=bLspW79He68

Please vote and share our story with your friends and family. Together we are stronger.

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