ST. JOHN | Help raise money for Niemann-Pick Type C research in honor of 9-year-old Schererville resident Kailey Florkiewicz by participating in a Walk/Run for Kailey at 1 p.m. Sunday.
The 3-mile (12 laps) event will take place at the Clark Middle School Track, 8915 W. 93rd Ave., St. John.
Minimum sponsorship is $20 per participant, and age groups are 18 and younger, and 19 and older. Prizes will be awarded to the top two male and female finishers in each age group for runners. Walkers who finish will be entered into a drawing for prizes.
Contact Jessica Buikema at (219) 805-5242 or firstname.lastname@example.org
Sponsorship money must be turned in no later than Sunday. Make checks payable to NNPDF. Sponsorship money can also be paid via PayPal. Sign in to your PayPal account, click on “send money”; send to email email@example.com, check “sending money to family or friends”. In the subject line, enter “Walk for Kailey” and in the message area, list the name of the participant(s) and their sponsorship amount.
All contributions and donations to the NNPDF are fully tax-deductible as allowed by law. The NNPDF is a registered 501(c)(3) non-profit organization. Tax ID# 35-1844264
In the event of heavy rain, the event will be cancelled and sponsorship money can be dropped off from 1 to 3 p.m. Sunday at 7349 Bell St., Schererville.
Kailey, the daughter of Roger and Krissy Florkiewicz, owners of Automation & Control Services Inc. of Schererville, was diagnosed with Niemann-Pick Type C earlier this year. It is an extremely rare, incurable and degenerative neurological disorder with less than 200 confirmed cases in the U.S. and less than 500 worldwide.
Symptoms include enlarged spleen and liver, loss of muscle control, deterioration of speech, seizures and dementia, leading to progressive neurological and intellectual decline. Currently, there is no cure.
With support, the National Niemann-Pick Disease Foundation can advance critical research.