Walk or run for Kailey this Sunday in St. John

2013-05-03T00:00:00Z Walk or run for Kailey this Sunday in St. JohnBy Times Staff nwitimes.com
May 03, 2013 12:00 am  • 

ST. JOHN | Help raise money for Niemann-Pick Type C research in honor of 9-year-old Schererville resident Kailey Florkiewicz by participating in a Walk/Run for Kailey at 1 p.m. Sunday.

The 3-mile (12 laps) event will take place at the Clark Middle School Track, 8915 W. 93rd Ave., St. John.

Minimum sponsorship is $20 per participant, and age groups are 18 and younger, and 19 and older. Prizes will be awarded to the top two male and female finishers in each age group for runners. Walkers who finish will be entered into a drawing for prizes.

Contact Jessica Buikema at (219) 805-5242 or  sjbuikema@sbcglobal.net

Sponsorship money must be turned in no later than Sunday. Make checks payable to NNPDF. Sponsorship money can also be paid via PayPal. Sign in to your PayPal account, click on “send money”; send to email kinsuz114@msn.com, check “sending money to family or friends”. In the subject line,  enter “Walk for Kailey” and in the message area, list the name of the participant(s) and their sponsorship amount.

All contributions and donations to the NNPDF are fully tax-deductible as allowed by law. The NNPDF is a registered 501(c)(3) non-profit organization. Tax ID# 35-1844264

In the event of heavy rain, the event will be cancelled and sponsorship money can be dropped off from 1 to 3 p.m. Sunday at 7349 Bell St., Schererville.

Kailey, the daughter of Roger and Krissy Florkiewicz, owners of Automation & Control Services Inc. of Schererville, was diagnosed with Niemann-Pick Type C earlier this year. It is an extremely rare, incurable and degenerative neurological disorder with less than 200 confirmed cases in the U.S. and less than 500 worldwide.

Symptoms include enlarged spleen and liver, loss of muscle control, deterioration of speech, seizures and dementia, leading to progressive neurological and intellectual decline. Currently, there is no cure.

With support, the National Niemann-Pick Disease Foundation can advance critical research.

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About St. John

Town Hall

10955 W. 93rd Avenue St. John, IN 46373
219.558.2078 (Fax)

Police Department

11033 W. 93rd Avenue St. John, IN 46373
Fax: 219.558.2166

Fire Department

11033 W. 93rd Avenue St. John, IN 46373
Fax: 219.558.2080

Parks and Recreation

9350 Hack St., Bldg 2 St. John, IN 46373
219.558.2032 (Fax)

Lake Central School Corporation

Kay Trapp Administration Center
8260 Wicker Avenue
St. John, Indiana 46373
Phone: 219.365.8507

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