I am 16 years old. Two months ago, my youth leader was diagnosed with a rare genetic disorder known as Ehlers-Danlos syndrome.
However, most doctors are not educated about Ehlers-Danlos syndrome, and no research has been done on how to treat it.
A petition has been started on the White House website that anyone can sign. This petition will help those affected, by recognizing EDS as a disability and increasing research.
However, the petition needs a lot more signatures by next week. I feel this could be a very interesting story that would also have very positive repercussions. I would be eternally grateful if you choose to support this worthy cause.
- Meghan Adams, Schererville