Seeking petition signatures to recognize rare disease

2012-12-27T00:00:00Z Seeking petition signatures to recognize rare disease nwitimes.com
December 27, 2012 12:00 am

I am 16 years old. Two months ago, my youth leader was diagnosed with a rare genetic disorder known as Ehlers-Danlos syndrome.

However, most doctors are not educated about Ehlers-Danlos syndrome, and no research has been done on how to treat it.

A petition has been started on the White House website that anyone can sign. This petition will help those affected, by recognizing EDS as a disability and increasing research.

However, the petition needs a lot more signatures by next week. I feel this could be a very interesting story that would also have very positive repercussions. I would be eternally grateful if you choose to support this worthy cause.

- Meghan Adams, Schererville

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