Darla Winland’s maternal aunt succumbed to breast cancer at age 50, which means Winland has been hyperaware of her family history of breast cancer and her own need for early mammograms. So she started getting the screening, typically recommended by doctors when a woman turns 40, early. Winland started going to regional experts at Rush University Medical Center and Northwestern Memorial Hospital, obtaining, she thought, the best possible medical screenings for herself given her family history of breast cancer.
Her diligence made the discovery of a lump in her breast in August 2014 all the more shocking. Winland was in the best physical shape of her life, getting up at 5:30 every morning for CrossFit workouts. In the shower after her workout one morning, Winland felt a lump. She was immediately alarmed and later asked her husband to feel it. When he confirmed her concerns, Winland hightailed it to Northwestern the next day, seeing a doctor who felt not one, but three lumps.
Winland felt blindsided. “Here I thought I was doing the very best for myself, getting my annual mammograms,” she says. Her doctor ordered an ultrasound that day, after which it was confirmed she had cancer that needed to be taken care of right away. It turns out that Winland’s many mammograms hadn’t detected the cancer because of her dense breast tissue.
According to the Mayo Clinic, “Breast tissue is composed of milk glands, milk ducts, and supportive tissue (dense breast tissue), and fatty tissue (nondense breast tissue). When viewed on a mammogram, women with dense breasts have more dense tissue than fatty tissue. On a mammogram, nondense breast tissue appears dark and transparent. Dense breast tissue appears as a solid white area on a mammogram, which makes it difficult to see through.”
After her ultrasound, Winland continued on to biopsies and, finally, a breast MRI to see how far the cancer had spread. She asked the MRI technician if women with dense breast tissue like hers typically have annual breast MRIs as part of their cancer screenings. Winland was shocked at the answer, which was, “No.” Winland says, “I cried. Why did no one tell me? Why was no one telling women they may need this other screening?” Having been so aware of her family history of breast cancer, Winland would have most certainly gotten the MRI every year.
Since her diagnosis, Winland has undergone a double mastectomy, six months of dense dose chemotherapy, seven surgeries, and 33 radiation treatments, in addition to a yearlong stint on an experimental drug. One of Winland’s doctors told her later that finding her cancer via mammogram would have been like looking for a single snowflake in a snowstorm. Her surgeon estimated that her cancer had been spreading for two and a half years. “That’s two or three mammograms that didn’t catch it,” she says. The cancer was rated as Stage 3C and doctors told Winland that, had she been undergoing MRI screenings, they might have caught it before or at Stage 1. Treatments at that low stage are less invasive and life-altering.
Now, Winland is making it her mission to spread the word about the need for further cancer screenings in women with dense breast tissue. She is often invited to speak to local women’s groups, and she is a committee member, fundraiser and fashion show model for the Indiana Women in Need (IWIN) Foundation. The organization supports women receiving treatment for breast cancer “by securing and paying for individual services that relieve emotional, physical and financial burdens,” according to the website. Winland was a recipient of the Foundation’s generosity while undergoing treatment.
If there’s anything Winland says she could have done differently with regard to monitoring her breast health, she says she would have been serious about doing the recommended self breast exam. Self exams are often key in identifying tumors and swollen lymph nodes. And, of course, Winland would have gotten the MRI screening she now knows she needed.
Instead, Winland is making other women aware of the additional screening they may need to preserve their breast health and even their lives. “I don’t want any woman to go get a mammogram every year and walk out thinking they’re fine if they’re not. I want to give other women the information I didn’t have,” she says. “Because breast cancer is a silent killer.”
Winland is currently dealing with the aftermath of cancer treatment. Her health is improving, but “chemo ravages your body,” she says. She has joint and feet issues along with lymphedema, swelling in her arm due to the removal of lymph nodes as part of her treatment. But neither the cancer nor its effects can prevent her from living a full life. Winland and her husband have a blended family of six kids, ages 13 to 20. She is a real estate broker and has other entrepreneurial endeavors. And she makes it a point to talk to every woman she can about breast cancer screenings. It’s too important not to talk about.
“If the conversation gets friendly, I go there,” she says. “I figure, when you go through something like this, you can be bitter about it, or you can pay it forward and you can help other people.”